MDSK welcomes you We Celebrated rare Disease Day February 2016 Joining hands in making the rare disease voices heard

MDSK welcomes you

Muscular Dystrophy Society Kenya (MDSK) is a support network for people with muscular dystrophy, their families and caregivers. It aims to create more awareness about muscular dystrophy which is a genetic condition affecting different muscles in the body.

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We Celebrated rare Disease Day February 2016

This was the first physical celebration of Rare Disease Day since Kenya started marking the day in 2014. MDSK joined Stepping Stones ( Kenya) and Gertrude's Children's Hospital foundation in celebrating this day

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Joining hands in making the rare disease voices heard

Rare Disease Day takes place on the last day of February each year.The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases. Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage. Kenya marked the first rare disease day in 2014 by running a social media campaign and a media appearance on the KTN breakfast show.

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Muscular Dystrophy Society Kenya
About

Muscular Dystrophy Society Kenya (MDSK)is a patient and family driven organization providing a support platform for people with muscular dystrophy and other neuromuscular conditions in Kenya. The main aim is to provide a support system and information hub for those with muscular dystrophy, neuromuscular conditions and their families in Kenya. MDSK works closely with medical […]

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What We Do

Muscular Dystrophy Society Kenya (MDSK) is involved in various activities to offer the much needed support for those with muscular dystrophy and their families.

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World Duchenne Muscular Dystrophy Awareness Day -WDAD 2016

EARLY SIGNS 2016 World Duchenne Awareness Day 2016 One in 3,500 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). One in 3,500 might seem a drop in the ocean but including their family members, the daily lives of millions of people around the globe are affected. […]

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Hello world!

Welcome, karibu to the Muscular Dystrophy Society Kenya’s website, keep it here for updates on what we are upto. Cheers!

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What We Do

Muscular Dystrophy Society Kenya (MDSK) is involved in various activities to offer the much needed support for those with muscular dystrophy and their families.

Home Page

Rare Disease Day celebrations are with us yet again! On the 25th of this month, February, Gertrude’s Children’s Hospital will host us for the second year in a row at the Training school,Muthaiga. The 2017 theme is RESEARCH : WITH RESEARCH POSSIBILITIES ARE LIMITLESS As a special feature, On Beauty, a documentary on Rare conditions […]

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